SecondThis is a touching scene in Tabea Hosche’s first documentary about her family. Inside, you can see the reporter sitting on the hospital bed of her eldest daughter Uma, who is about four years old. The door of the room opened, and Uma’s sister Abba had just walked safely in the room and looked at the room carefully. When she saw her mother, a smile appeared on her face, and she ran towards Hosche. Eba picked them up. From a revealing perspective, the one-and-a-half-year-old child looked at the bandaged sister on the bed, and his big eyes suddenly became serious.
Tabea Hosche’s 11-year-old daughter Uma has such a rare genetic defect that the complex name of the syndrome should not be mentioned here. Spontaneous gene mutations are especially manifested in the fact that the brain cannot grow normally.The consequences are mental damage And the skull is too small. This in turn means that everything in the head is very tense. Uma’s hearing is very bad because her ear canal is very narrow. This is also one of the reasons why she suffers from language development disorder. When Hosche was pregnant with Ebba at the age of three, Uma also had a seizure, but this was not the main feature of the actual disease.
Honest insights into daily life
As a filmmaker, the 42-year-old Hosche, born in Uma, naturally took pictures of her daughter with her mobile phone. In 2013, she started filming a WDR documentary, capturing how she and her husband deal with the lives of Uma and her healthy little sister Aiba from the inside out. Since 2018, Joseph has also been a member of this family. In her three films at the same time, Hosche focuses on honesty and simple insight into everyday life. In addition, it also shows that brothers and sisters of children with disabilities or chronic diseases also face challenges.
They are sometimes referred to as “shadow children,” and even though most affected people may not recognize the name, healthy children usually receive much less attention from their parents than impaired siblings. On the one hand, this is due to repeated hospitalizations, during which the mother usually accompanies the sick child. Of course, this is because children with disabilities need fundamentally increased care.
Tabea Hosche said that Uma is not only their first child, but also the first grandson in the family. She said: “My impression is that Uma has a sibling. I certainly think that in this kind of fraternal relationship, the problem may play a role that does not exist in other relationships, but in general, I am very The second child’s thoughts of entering our home are obviously positive.”
Brothers and sisters are mutually beneficial, but not only
This feeling was confirmed after birth. In the first few weeks and months, another person needs unrestricted attention at certain times, such as when breastfeeding. Uma had to accept this, and she also learned it. Then she benefited from Ebba’s development steps: the little sister grew up and pulled Uma, which also promoted her development. The two became allies. For a while, Ebba knew her sister better than her parents; then she “translated” for you.
